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  1. Home
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  3. Here we go for round two of #PanCholLiveToot!

Here we go for round two of #PanCholLiveToot!

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  • Jonathan Kamens 86 47J Jonathan Kamens 86 47

    It's finally time to take the vaccine. Down the hatch!
    This is live, genetically modified cholera bacteria diluted in distilled water. It tastes just a little gross, mostly just salty.
    Now I have to wait an hour before I can eat lunch.
    I took the vaccine >20 minutes ago and they still haven't brought me the menu to order lunch, and it's going to take an hour for the food to be delivered once I order, so I am hangry.
    #PanCholLiveToot

    Justin DerrickJ This user is from outside of this forum
    Justin DerrickJ This user is from outside of this forum
    Justin Derrick
    wrote last edited by
    #11

    @jik Thank you for contributing to science! πŸ™‚

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    • Jonathan Kamens 86 47J Jonathan Kamens 86 47

      It's finally time to take the vaccine. Down the hatch!
      This is live, genetically modified cholera bacteria diluted in distilled water. It tastes just a little gross, mostly just salty.
      Now I have to wait an hour before I can eat lunch.
      I took the vaccine >20 minutes ago and they still haven't brought me the menu to order lunch, and it's going to take an hour for the food to be delivered once I order, so I am hangry.
      #PanCholLiveToot

      Jonathan Kamens 86 47J This user is from outside of this forum
      Jonathan Kamens 86 47J This user is from outside of this forum
      Jonathan Kamens 86 47
      wrote last edited by
      #12

      The food service here is provided by Sodexo. They are… not good at it.
      When I got to the floor this morning I told the nurse I would need a kosher menu; although I'll eat vegetarian food that isn't certified kosher, I won't eat non-kosher meat, and I don't want to go a whole week with no meat). She called food service to ask them to send up the kosher menu. They told her they don't have a kosher menu, which isn't true; they gave me one the last time I was here.
      (continued)
      #PanCholLiveToot

      Jonathan Kamens 86 47J 1 Reply Last reply
      0
      • Jonathan Kamens 86 47J Jonathan Kamens 86 47

        The food service here is provided by Sodexo. They are… not good at it.
        When I got to the floor this morning I told the nurse I would need a kosher menu; although I'll eat vegetarian food that isn't certified kosher, I won't eat non-kosher meat, and I don't want to go a whole week with no meat). She called food service to ask them to send up the kosher menu. They told her they don't have a kosher menu, which isn't true; they gave me one the last time I was here.
        (continued)
        #PanCholLiveToot

        Jonathan Kamens 86 47J This user is from outside of this forum
        Jonathan Kamens 86 47J This user is from outside of this forum
        Jonathan Kamens 86 47
        wrote last edited by
        #13

        (And if it _is_ true that they don't have a printed kosher menu, then that is, you know, not OK?)
        Anyway, apparently the nurse spoke to someone else who said they do indeed have a kosher menu and they would send one up; it is now several hours later and they still haven't done that.
        The non-kosher printed menu has a typo on it.
        There's a QR code on the menu for viewing the weekly specials; the specials posted at that URL are from May.
        (continued)
        #PanCholLiveToot

        Jonathan Kamens 86 47J 1 Reply Last reply
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        • Jonathan Kamens 86 47J Jonathan Kamens 86 47

          (And if it _is_ true that they don't have a printed kosher menu, then that is, you know, not OK?)
          Anyway, apparently the nurse spoke to someone else who said they do indeed have a kosher menu and they would send one up; it is now several hours later and they still haven't done that.
          The non-kosher printed menu has a typo on it.
          There's a QR code on the menu for viewing the weekly specials; the specials posted at that URL are from May.
          (continued)
          #PanCholLiveToot

          Jonathan Kamens 86 47J This user is from outside of this forum
          Jonathan Kamens 86 47J This user is from outside of this forum
          Jonathan Kamens 86 47
          wrote last edited by
          #14

          When I gave up on waiting for the kosher menu and called to order vegetarian food from the regular menu for lunch, they said I couldn't because there was a "kosher" restriction on my diet in the database.
          This is stupid. "Kosher" isn't a medical restriction, it's a personal preference. If someone indicates on check-in that they want to have the option of ordering kosher food, they should still be able to choose in the moment to order from the regular menu.
          (continued)
          #PanCholLiveToot

          Jonathan Kamens 86 47J 1 Reply Last reply
          0
          • Jonathan Kamens 86 47J Jonathan Kamens 86 47

            When I gave up on waiting for the kosher menu and called to order vegetarian food from the regular menu for lunch, they said I couldn't because there was a "kosher" restriction on my diet in the database.
            This is stupid. "Kosher" isn't a medical restriction, it's a personal preference. If someone indicates on check-in that they want to have the option of ordering kosher food, they should still be able to choose in the moment to order from the regular menu.
            (continued)
            #PanCholLiveToot

            Jonathan Kamens 86 47J This user is from outside of this forum
            Jonathan Kamens 86 47J This user is from outside of this forum
            Jonathan Kamens 86 47
            wrote last edited by
            #15

            So to be able to order from the regular menu I had to hang up, have the nurse to remove the kosher designation from my patient record, and then call back.
            (continued)
            #PanCholLiveToot

            Jonathan Kamens 86 47J 1 Reply Last reply
            0
            • Jonathan Kamens 86 47J Jonathan Kamens 86 47

              So to be able to order from the regular menu I had to hang up, have the nurse to remove the kosher designation from my patient record, and then call back.
              (continued)
              #PanCholLiveToot

              Jonathan Kamens 86 47J This user is from outside of this forum
              Jonathan Kamens 86 47J This user is from outside of this forum
              Jonathan Kamens 86 47
              wrote last edited by
              #16

              More food service whinging:
              * I track my caloric intake, and they don't provide calorie counts on the menu. I can ask over the phone when I order, but that's a hassle and it gets messed up if I decide to save part of my meal for later.
              * Ordering over the phone is very much not state-of-the-art for hospital food service; modern hospitals allow online ordering.
              I have already broken into my snacks from home because lunch is so delayed.
              I am sure I will have more food complaints.
              #PanCholLiveToot

              Jonathan Kamens 86 47J 1 Reply Last reply
              0
              • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                More food service whinging:
                * I track my caloric intake, and they don't provide calorie counts on the menu. I can ask over the phone when I order, but that's a hassle and it gets messed up if I decide to save part of my meal for later.
                * Ordering over the phone is very much not state-of-the-art for hospital food service; modern hospitals allow online ordering.
                I have already broken into my snacks from home because lunch is so delayed.
                I am sure I will have more food complaints.
                #PanCholLiveToot

                Jonathan Kamens 86 47J This user is from outside of this forum
                Jonathan Kamens 86 47J This user is from outside of this forum
                Jonathan Kamens 86 47
                wrote last edited by
                #17

                This was lunch. Credit where credit is due: it was not terrible, and they sent up a flyer showing the weekly specials which makes it slightly less not ok that they haven't updated the specials on the website since May.
                I saved the fruit and cherry ice for later. The salad vegetables were very fresh and tasty. The "broccoli cheddar cauliflower crust pizza" was no more or less boring than I expected.
                #PanCholLiveToot

                Jonathan Kamens 86 47J 1 Reply Last reply
                0
                • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                  This was lunch. Credit where credit is due: it was not terrible, and they sent up a flyer showing the weekly specials which makes it slightly less not ok that they haven't updated the specials on the website since May.
                  I saved the fruit and cherry ice for later. The salad vegetables were very fresh and tasty. The "broccoli cheddar cauliflower crust pizza" was no more or less boring than I expected.
                  #PanCholLiveToot

                  Jonathan Kamens 86 47J This user is from outside of this forum
                  Jonathan Kamens 86 47J This user is from outside of this forum
                  Jonathan Kamens 86 47
                  wrote last edited by
                  #18

                  Whenever I travel I get nervous about the fact that I have only one laptop with me. At home I have my primary desktop and two laptops, so if one of my computers stops working I have two others to fall back on. But on the road I've got just the one.
                  Crazy, right? Well, when I sat down to work a few minutes ago after eating lunch, my laptop was hot and unresponsive. I had to use the power button to power-cycle it.
                  It's just a one-off, right? Nothing to worry about? 😟
                  #PanCholLiveToot

                  Jonathan Kamens 86 47J 1 Reply Last reply
                  0
                  • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                    Whenever I travel I get nervous about the fact that I have only one laptop with me. At home I have my primary desktop and two laptops, so if one of my computers stops working I have two others to fall back on. But on the road I've got just the one.
                    Crazy, right? Well, when I sat down to work a few minutes ago after eating lunch, my laptop was hot and unresponsive. I had to use the power button to power-cycle it.
                    It's just a one-off, right? Nothing to worry about? 😟
                    #PanCholLiveToot

                    Jonathan Kamens 86 47J This user is from outside of this forum
                    Jonathan Kamens 86 47J This user is from outside of this forum
                    Jonathan Kamens 86 47
                    wrote last edited by
                    #19

                    My laptop went crazy again, but this time it did it gradually while I was using it, so I was able to figure out that the problem is one of firefox's WebExtensions processes is sucking up all my memory.
                    Remember when 16GB of RAM was enough to run Linux?
                    I don't want to waste any more time now dealing with this so as a stopgap I just added a 16GB swap file to the 4GB of zramswap already configured.
                    I'll need figure out at some point which extension is leaking RAM, but not now.
                    #PanCholLiveToot

                    Jonathan Kamens 86 47J 1 Reply Last reply
                    0
                    • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                      My laptop went crazy again, but this time it did it gradually while I was using it, so I was able to figure out that the problem is one of firefox's WebExtensions processes is sucking up all my memory.
                      Remember when 16GB of RAM was enough to run Linux?
                      I don't want to waste any more time now dealing with this so as a stopgap I just added a 16GB swap file to the 4GB of zramswap already configured.
                      I'll need figure out at some point which extension is leaking RAM, but not now.
                      #PanCholLiveToot

                      Jonathan Kamens 86 47J This user is from outside of this forum
                      Jonathan Kamens 86 47J This user is from outside of this forum
                      Jonathan Kamens 86 47
                      wrote last edited by
                      #20

                      Good morning #PanCholLiveToot fans! How are y'all doing today? I had a decent night's sleep in my dark, quiet isolation room, though it would have been longer if I hadn't binge-watched 7+ hours of Babylon 5 before going to sleep.
                      The episode where EarthGov tries to torture a confession out of Sheridan ("Intersections in Real Time") is extremely well-done and absolutely horrifying.

                      Jonathan Kamens 86 47J 1 Reply Last reply
                      0
                      • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                        Good morning #PanCholLiveToot fans! How are y'all doing today? I had a decent night's sleep in my dark, quiet isolation room, though it would have been longer if I hadn't binge-watched 7+ hours of Babylon 5 before going to sleep.
                        The episode where EarthGov tries to torture a confession out of Sheridan ("Intersections in Real Time") is extremely well-done and absolutely horrifying.

                        Jonathan Kamens 86 47J This user is from outside of this forum
                        Jonathan Kamens 86 47J This user is from outside of this forum
                        Jonathan Kamens 86 47
                        wrote last edited by
                        #21

                        This was dinner last night. In Sodexo's defense, this is exactly what I ordered, so if it's a little sparse that's my fault.
                        The mac & cheese was not noteworthy. The steamed broccoli was good and I wish they had given me more of it.
                        Dinner a half hour later than it was supposed to. Grr.
                        The food menu claims food service opens at 6:30am, but if you call when they're closed the automated message says they open at 7:00am.
                        Apparently consistency is too much to expect.
                        #PanCholLiveToot

                        Jonathan Kamens 86 47J 1 Reply Last reply
                        0
                        • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                          This was dinner last night. In Sodexo's defense, this is exactly what I ordered, so if it's a little sparse that's my fault.
                          The mac & cheese was not noteworthy. The steamed broccoli was good and I wish they had given me more of it.
                          Dinner a half hour later than it was supposed to. Grr.
                          The food menu claims food service opens at 6:30am, but if you call when they're closed the automated message says they open at 7:00am.
                          Apparently consistency is too much to expect.
                          #PanCholLiveToot

                          Jonathan Kamens 86 47J This user is from outside of this forum
                          Jonathan Kamens 86 47J This user is from outside of this forum
                          Jonathan Kamens 86 47
                          wrote last edited by
                          #22

                          Today I am hoping to have a productive, full work day!
                          #PanCholLiveToot

                          Jonathan Kamens 86 47J 1 Reply Last reply
                          0
                          • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                            Today I am hoping to have a productive, full work day!
                            #PanCholLiveToot

                            Jonathan Kamens 86 47J This user is from outside of this forum
                            Jonathan Kamens 86 47J This user is from outside of this forum
                            Jonathan Kamens 86 47
                            wrote last edited by
                            #23

                            Here's this morning's breakfast. It arrived in record time and both the potatoes and the apple compote were actually pretty good. The menu claims the pancakes are gluten free. If that's accurate then I'm impressed, because I couldn't tell. If it's not accurate than uh-oh.
                            #PanCholLiveToot

                            Jonathan Kamens 86 47J 1 Reply Last reply
                            0
                            • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                              Here's this morning's breakfast. It arrived in record time and both the potatoes and the apple compote were actually pretty good. The menu claims the pancakes are gluten free. If that's accurate then I'm impressed, because I couldn't tell. If it's not accurate than uh-oh.
                              #PanCholLiveToot

                              Jonathan Kamens 86 47J This user is from outside of this forum
                              Jonathan Kamens 86 47J This user is from outside of this forum
                              Jonathan Kamens 86 47
                              wrote last edited by
                              #24

                              I asked the nurse this morning for a couple Tylenol because I woke up with a headache, presumably from bingeing TV until 1:30am (bad idea, do not recommend). When she brought the Tylenol it came with my daily vitamin D pill. And I mean literally _my_ vitamin D pill, i.e., it's from a bottle of pills I brought to the hospital from home. As per hospital policy, I had to turn it over to the pharmacy yesterday so they could dispense it during my stay. Srsly.
                              #PanCholLiveToot

                              Jonathan Kamens 86 47J 1 Reply Last reply
                              0
                              • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                                I asked the nurse this morning for a couple Tylenol because I woke up with a headache, presumably from bingeing TV until 1:30am (bad idea, do not recommend). When she brought the Tylenol it came with my daily vitamin D pill. And I mean literally _my_ vitamin D pill, i.e., it's from a bottle of pills I brought to the hospital from home. As per hospital policy, I had to turn it over to the pharmacy yesterday so they could dispense it during my stay. Srsly.
                                #PanCholLiveToot

                                Jonathan Kamens 86 47J This user is from outside of this forum
                                Jonathan Kamens 86 47J This user is from outside of this forum
                                Jonathan Kamens 86 47
                                wrote last edited by
                                #25

                                I had another blood draw this morning, fortunately with only 3 vials rather than yesterday's 7 vials. And they managed to get what they needed with just one venipuncture, so that was nice.
                                #PanCholLiveToot

                                Jonathan Kamens 86 47J 1 Reply Last reply
                                0
                                • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                                  I had another blood draw this morning, fortunately with only 3 vials rather than yesterday's 7 vials. And they managed to get what they needed with just one venipuncture, so that was nice.
                                  #PanCholLiveToot

                                  Jonathan Kamens 86 47J This user is from outside of this forum
                                  Jonathan Kamens 86 47J This user is from outside of this forum
                                  Jonathan Kamens 86 47
                                  wrote last edited by
                                  #26

                                  Those of you who were with me on this journey the last time around may recall that it involves collecting stool samples. That's happening this time as well, starting today (I got a free pass yesterday). The procedure hasn't changed from last time, so if you're curious you can read what I wrote about it before, at https://federate.social/@jik/113414002326890114 or https://blog.kamens.us/2025/09/04/panchol-clinical-trial-thread-unroll/#poop .
                                  #PanCholLiveToot

                                  Jonathan Kamens 86 47J 1 Reply Last reply
                                  0
                                  • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                                    Those of you who were with me on this journey the last time around may recall that it involves collecting stool samples. That's happening this time as well, starting today (I got a free pass yesterday). The procedure hasn't changed from last time, so if you're curious you can read what I wrote about it before, at https://federate.social/@jik/113414002326890114 or https://blog.kamens.us/2025/09/04/panchol-clinical-trial-thread-unroll/#poop .
                                    #PanCholLiveToot

                                    Jonathan Kamens 86 47J This user is from outside of this forum
                                    Jonathan Kamens 86 47J This user is from outside of this forum
                                    Jonathan Kamens 86 47
                                    wrote last edited by
                                    #27

                                    The nurses are cool about it, but I have to say it's really weird to press the call button and then when the nurse comes in say, "Here, I have some poop for you!" and hand them the equivalent of a sorbet tub with poop in it.
                                    As the nurse was leaving the room a few minutes ago after giving me the sample container to use, she said, "Thanks for your poop!" 😜
                                    #PanCholLiveToot

                                    Jonathan Kamens 86 47J 1 Reply Last reply
                                    0
                                    • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                                      The nurses are cool about it, but I have to say it's really weird to press the call button and then when the nurse comes in say, "Here, I have some poop for you!" and hand them the equivalent of a sorbet tub with poop in it.
                                      As the nurse was leaving the room a few minutes ago after giving me the sample container to use, she said, "Thanks for your poop!" 😜
                                      #PanCholLiveToot

                                      Jonathan Kamens 86 47J This user is from outside of this forum
                                      Jonathan Kamens 86 47J This user is from outside of this forum
                                      Jonathan Kamens 86 47
                                      wrote last edited by
                                      #28

                                      ProTip, courtesy of @msokolov in https://fosstodon.org/@msokolov/115200828334719584: If you're going into the hospital and you'll be showering while you're there, bring a big, fluffy towel with you. Hospital towels are small, scratchy, and threadbare. You will be glad to have a nice one.
                                      Here you can see (half of) the big towel I brought with me vs. a hospital towel.
                                      #PanCholLiveToot

                                      Jonathan Kamens 86 47J 1 Reply Last reply
                                      0
                                      • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                                        ProTip, courtesy of @msokolov in https://fosstodon.org/@msokolov/115200828334719584: If you're going into the hospital and you'll be showering while you're there, bring a big, fluffy towel with you. Hospital towels are small, scratchy, and threadbare. You will be glad to have a nice one.
                                        Here you can see (half of) the big towel I brought with me vs. a hospital towel.
                                        #PanCholLiveToot

                                        Jonathan Kamens 86 47J This user is from outside of this forum
                                        Jonathan Kamens 86 47J This user is from outside of this forum
                                        Jonathan Kamens 86 47
                                        wrote last edited by
                                        #29

                                        Also, if you expect to be spending a lot of time in bed in the hospital, then as @Adventurer (https://sfba.social/@Adventurer/115199676231327810) and @BonehouseWasps (https://mastodon.social/@BonehouseWasps/115199929810382931) suggest, consider bringing a comfortable robe. I personally did not bring a robe because I'm spending my days up and working, not lying in the hospital bed, and for that I prefer to be dressed in real clothes.
                                        #PanCholLiveToot

                                        Jonathan Kamens 86 47J 1 Reply Last reply
                                        0
                                        • Jonathan Kamens 86 47J Jonathan Kamens 86 47

                                          Also, if you expect to be spending a lot of time in bed in the hospital, then as @Adventurer (https://sfba.social/@Adventurer/115199676231327810) and @BonehouseWasps (https://mastodon.social/@BonehouseWasps/115199929810382931) suggest, consider bringing a comfortable robe. I personally did not bring a robe because I'm spending my days up and working, not lying in the hospital bed, and for that I prefer to be dressed in real clothes.
                                          #PanCholLiveToot

                                          Jonathan Kamens 86 47J This user is from outside of this forum
                                          Jonathan Kamens 86 47J This user is from outside of this forum
                                          Jonathan Kamens 86 47
                                          wrote last edited by
                                          #30

                                          Here's a #poll that's relevant to my experience in the hospital for this clinical trial.
                                          Which would you rather have? A week-long vacation where you eat:
                                          #PanCholLiveToot

                                          Jonathan Kamens 86 47J 1 Reply Last reply
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